*THIS IS A PREORDER - PRE ORDERS ACCEPTED UNTIL AUGUST 4TH*
PREORDER ENDS AUGUST 4TH AND SHIRTS GO INTO PRODUCTION AUGUST 8TH.
ORDERS WILL START SHIPPING AUGUST 10TH, PICK UPS AVAILABLE AUGUST 10TH
IF YOU CANNOT PICK UP PLEASE CHOOSE SHIPPING WE ARE LOCATED IN EDEN NC.
Wrenleys story from his mom -
Recently Wrenley, was diagnosed with Type II Cockayne Syndrome, which is a very rare genetic disorder that causes his little body to not grow the way it is supposed to. CS is a multi-system neurodegenerative disorder that causes premature aging and affects many parts of the body, such as Wrenley's little eyes and ears, and potentially could cause him to go deaf and blind. This rare disorder can also be life-shortening, and it has been estimated to us that our sweet Wrenley may only have 5-10 years with us. As heartbreaking and painful as this news has been, we have done a lot of research and had parents of other children with this disorder reach out to us and give us avenues and resources that we may be able to utilize to get Wrenley the best care possible by certain doctors that specialize in CS. With that being said, most of the specialists that Wrenley will need to see are either out of state or out of the US, so it will take money and travels to get to these specialists. Any money that we raise will go specifically to Wrenley and the effort to get him to the right doctors to give him the best care and longest life possible. We know God has a plan for Wrenley and our family, and hopefully, we'll be able to help other parents along the way that have children with the same disorder. From the bottom of our hearts, we want to say thank you to each and every one of you. No matter if it was a call, text, visit, or donation, it means more to us than you will ever know. July is Cockayne syndrome awareness month !! Help us spread the word and awareness for other children just like our sweet Wrenley